Tuesday, March 12, 2013

Hewitt and Titus Update

It was recently brought to my attention that I hadn't updated about Hewitt since originally asking for prayer for him!  I'm sorry about that.  We all picked up the virus/bacteria, whatever it was he was dealing with and we were sick for the next couple weeks after.  Thankfully, we are now back to "normal" health.

As far as Hewitt goes - it is hard for me to answer how he is doing.  Sometimes I just hate the question.  There are so many variables that go into it that I feel really frustrated trying to determine what is really going on.  He is able to take his medicine without anxiety again.  That is a huge blessing to us.  And, although he still deals with some anxiety, it isn't as intense as it was that week.  Praise Jesus!  We are still dealing with a high range of emotions with him and I don't always know how to help him with those emotions and that can be frustrating.  We are still on the lower dose of medicine, he is still having noticeable absence seizures and we have an appointment scheduled on the 28th of this month to figure out what our next step will be.

We also will be taking Titus in to Hewitt's neurologist on the 27th for a Video EEG.  He started having some involuntary movements last week.  They came on fairly suddenly and with quite the intensity.  I am trying to remain calm about it but I don't always succeed in that.  I have some days where I freak out and cry about it and some where I am able to just abide in knowing that God knows what is going on and I can trust that. The hardest part right now is just waiting for answers.  I really want to say that I don't think they're seizures but I don't feel like I can rule it out yet.  They look like tics, and while that would definitely be preferred over seizures, it still makes my mama heart sad.  If they keep going on like they do, my sweet boy will likely be a target for teasing and THAT is really hard for me to swallow. Titus is one of the most joyful and fun kids I have ever known.  I hate the idea of someone ever taking that from him.  I know I can't protect him forever, whether he has a tic disorder or not, but that doesn't mean I don't want to!

We would definitely appreciate prayers for the VEEG - we will be there for about 24 hours and Titus is not one to sit still.  This medical stuff is all new to him so I hope it doesn't scare him.  Also, for wisdom in knowing what our next step for Hewitt should be.  Thanks!


Aunt carole said...

Love you and all your boys!

Sarahendipity said...

Praying for your sweet boys! ❤