As I posted before, Hewitt's seizure streak was broken last Wednesday while my Dad was watching him. Since then, he has continued to gradually have more seizures. Friday morning he had a big seizure in bed with us, we had to use the emergency meds to stop it which we've never had to do before. We were a minute away from having to call 911.
Before we went to sleep the night before, we talked about how wierd it would be to see a big one since it's been over 3 weeks since he had one. That is a praise. But, now he's had 2 more since Friday and thankfully they've stopped themselves. They continue to increase but we go in tomorrow to meet with the neuro again. I do not like the second medication she has added. He has been having odd side effects that leave us very uneasy: anger, aggression, sadness, wierd thoughts. Not to mention, the increased seizures this last week. If anything significant changes after tomorow, I will let you know.
She prescribed him for a helmet this week. We have mixed feelings about it, but know that we should probably do it for his safety. He had a drop on the concrete Monday night and nailed the back of his head pretty hard. Poor baby. He braves it all very well though and is very tough!